s*****r
发帖数: 111 | 1 我妈今天告诉我说，我老家的邻居的儿子，9 岁， 刚刚被诊断出眼睛有问题，是青少
年遗传性黄斑变性 (Stargardt's Disease). 国内没有什么好的治疗方法， 不知道美
国这边有什么药物，或者手术的治疗方法没有。
我妈说我们的邻居很可怜，现在成天成宿睡不着觉，没有办法只知道哭。小孩的爷爷奶
奶也吃不下饭。国内的医生跟他们说如果治不好，到最后就失明了。
请问有没有好心的人知道这种病的治疗方法？ 到哪里买药呢？我也会问问我的眼科医
生。 |
s*****r
发帖数: 111 | 2 Thank you!
If it really works, do they need to come to America for the therapy? I don't
know how can they come here.
Leber's congenital amaurosis using gene therapy, which is also a genetic
disease causing blindness. the method should be able to be applied to other
diseases such as Stargardt disease. the results were published in the Lancet
very recently. |
p********5
发帖数: 7433 | 3 黄斑变性hard to cure.
Buy Lutein, which is the food of eye.
And dark green vegetables, egg, corn have Lutein.
Be strong. |
s*****r
发帖数: 111 | 4 Thank you.
有说葡萄籽挺好的, 也就是ISO-OPC. 但是葡萄籽提取物的成分里没有LUTEIN. 什么产
品里面含叶黄素呢? 国内好像还有一种药叫做乐盯叶黄素,好像是针对老年黄斑变性具
有明显的疗效, 对青少年黄斑变性好像没说有没有效果.
手术治疗会不会更有效些? 或者整容?
【在 p********5 的大作中提到】
: 黄斑变性hard to cure.
: Buy Lutein, which is the food of eye.
: And dark green vegetables, egg, corn have Lutein.
: Be strong.
|
s*****r
发帖数: 111 | 5 什么是delivery method？ 我可能对基因疗法不太熟悉。 基因疗法都需要准备哪些材
料？
你说的resources must be available before it can be done 又是什么意思？ 是说
要有很多试验证明这个方法在治疗STARGARDT好用才可以用吗？
多谢了。
in
disease |
s*****r
发帖数: 111 | 6 什么是delivery method？ 我可能对基因疗法不太熟悉。 基因疗法都需要准备哪些材
料？
你说的resources must be available before it can be done 又是什么意思？ 是说
要有很多试验证明这个方法在治疗STARGARDT好用才可以用吗？
多谢了。
in
disease |
p********5
发帖数: 7433 | 7 叶黄素, in egg, corn, dark green vegetables,
叶黄素only in Lutein,
Puritan pride has Lutein, and Herbal vision medicine. Buy from Puritan pride
. But I still will try buy another Lutein products from other brand, maybe
iherb or Nowfood have one.
In China, Lutein is very expensive compare to US.
But this disease hard to cure. |
